Join the KidneyCARE (Community Access to Research Equity)™ Study, a research study for people with kidney disease.
The KidneyCARE™ Study
The KidneyCARE Study is a patient registry for people at all stages and with all types of kidney disease. As part of the Study, you help research by answering survey questions about your experience with kidney disease.
After the consent, complete surveys with questions focused on your experience with kidney disease.
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Enjoy the benefits
Receive up-to-date education, information about support programs, and access to clinical trial opportunities.
KidneyCARE™ Study Relaunch FAQs
Why did the KidneyCARE Study (formerly known as the NKF Patient Network) move to a new technology platform?
What are the new features of the KidneyCARE Study?
Why did the name change?
Do I need to create a new account if I previously signed up for the NKF Patient Network?
Can I receive a copy of my data from the NKF Patient Network?
General FAQs
What is the KidneyCARE Study (formerly known as the NKF Patient Network)?
Is the KidneyCARE Study a patient registry?
How is the KidneyCARE Study different from other patient registries?
Why should I join the KidneyCARE Study?
How does the KidneyCARE Study work?
What materials do I need before registering?
How is my information kept private and secure?
Will I be able to learn about clinical trials and research?
Does the KidneyCARE Study cost anything to join?
How can I learn more about the KidneyCARE Study?
Questions?
If you have questions, please call the KidneyCARE Study team at 212.889.2210 ext.134 M-F 10am-4pm CT or email kidneycarestudy@kidney.org
Media Room
INFORMATIONAL VIDEO
How to Become Part of the KidneyCARE Study
Learn from Cari the five steps to participating in the KidneyCARE Study.
INFORMATIONAL VIDEO
Informed Consent and Data Security
Learn from Curtis the importance of the informed consent process and how we will keep your personal and health information private and secure.
DIVERSITY IN CLINICAL RESEARCH VIDEO
Why should diverse people join the KidneyCARE Study?
The KidneyCARE Study can help amplify diverse patients’ voices when determining and defining the most pressing needs of people living with kidney disease.
What People are Saying
NKF PATIENT ADVOCATE
Curtis Warfield
”This KidneyCARE Study will provide a lot of education that we need as patients as we advance through the different stages of kidney disease, through dialysis, transplant, and even post-transplant.”
Our Core Values
The KidneyCARE Study (Community Access to Research Equity) values a diverse, inclusive kidney community for kidney health equity.
Participation is open to all people with kidney disease
Participants reflect the diversity of kidney disease patients
Participants are partners
Data is accessible for research purposes
Sponsors
Foundational support for the KidneyCARE Study is provided through a collaboration with Bayer AG.